Founded | 1963 |
---|---|
Founder | Frank Schnabel |
Location | |
Area served | Worldwide |
Method | Therapy, Aid, and Education |
Members | 147 National Member Organizations [2] |
Key people | President Cesar Garrido [3] |
Website |
wfh |
The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improving the lives of people with hemophilia (also spelled haemophilia) and other genetic bleeding disorders. It educates people with bleeding disorders and lobbies for improved medical treatment. [4] [5] 75% of people in the world with bleeding disorders do not know it and do not receive care. [6] [7]
The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada. [1] [8] It has member organizations in 147 countries and official recognition from the World Health Organization. [2] The current President is Cesar Garrido. [9] [10]
World Hemophilia Day is held annually on April 17 by the WFH. [11] It is an awareness day for hemophilia and other bleeding disorders, [12] which also serves to raise funds and attract volunteers for the WFH. [13] It was started in 1989; April 17 was chosen in honor of Frank Schnabel's birthday. [14] [15]
World Federation of Hemophilia, Montreal, Quebec, Canada...the WFH headquarters at the address above.
The World Federation of Hemophilia (WFH) was created in 1963, and, nowadays, it includes national member organisations from 147 countries.
The WFH is an international, not-for profit organization that works to improve standards of treatment, promote advocacy, provide education, and advance medical research concerning hemophilia.
World Hemophilia Day 2019 aims to reach out as far and wide as possible to ensure proper diagnosis and treatment to nearly 75 percent of patients who still remain undiagnosed or don't have access to treatment.
The World Federation of Hemophilia (WFH) was established in 1963 by Frank Schnabel, a Montreal businessman born with severe hemophilia A.
Cesar Garrido, WFH President.
World Hemophilia Day is aimed at raising awareness about haemophilia and other bleeding disorders.
The World Federation of Haemophilia (WHF) started the day observed on April 17th...to raise awareness and funds for those who cannot afford treatment for this disease.
April 17 is observed as the World Haemophilia Day every year...It was started in 1989 by the World Federation of Hemophilia (WFH) which chose to bring the community together on April 17 in honour of WHF founder Frank Schnabel's birthday.
The theme of World Haemophilia Day 2023 is "Access for All: Prevention of Bleeds as the global standard of Care".
17th April 2022 - World Hemophilia Day - Theme: "Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy".
The theme of World Hemophilia Day in 2020 is "Get+involved".
We are also promoting the World Haemophilia Day theme that sharing knowledge makes us stronger.
This year's EHC celebration was in line with the theme proposed by the World Federation of Hemophilia (WFH): 'Treatment for all, the vision of all.'
Founded | 1963 |
---|---|
Founder | Frank Schnabel |
Location | |
Area served | Worldwide |
Method | Therapy, Aid, and Education |
Members | 147 National Member Organizations [2] |
Key people | President Cesar Garrido [3] |
Website |
wfh |
The World Federation of Hemophilia (WFH) is an international non-profit organization dedicated to improving the lives of people with hemophilia (also spelled haemophilia) and other genetic bleeding disorders. It educates people with bleeding disorders and lobbies for improved medical treatment. [4] [5] 75% of people in the world with bleeding disorders do not know it and do not receive care. [6] [7]
The WFH was established by Frank Schnabel in 1963 and has its headquarters in Montreal, Canada. [1] [8] It has member organizations in 147 countries and official recognition from the World Health Organization. [2] The current President is Cesar Garrido. [9] [10]
World Hemophilia Day is held annually on April 17 by the WFH. [11] It is an awareness day for hemophilia and other bleeding disorders, [12] which also serves to raise funds and attract volunteers for the WFH. [13] It was started in 1989; April 17 was chosen in honor of Frank Schnabel's birthday. [14] [15]
World Federation of Hemophilia, Montreal, Quebec, Canada...the WFH headquarters at the address above.
The World Federation of Hemophilia (WFH) was created in 1963, and, nowadays, it includes national member organisations from 147 countries.
The WFH is an international, not-for profit organization that works to improve standards of treatment, promote advocacy, provide education, and advance medical research concerning hemophilia.
World Hemophilia Day 2019 aims to reach out as far and wide as possible to ensure proper diagnosis and treatment to nearly 75 percent of patients who still remain undiagnosed or don't have access to treatment.
The World Federation of Hemophilia (WFH) was established in 1963 by Frank Schnabel, a Montreal businessman born with severe hemophilia A.
Cesar Garrido, WFH President.
World Hemophilia Day is aimed at raising awareness about haemophilia and other bleeding disorders.
The World Federation of Haemophilia (WHF) started the day observed on April 17th...to raise awareness and funds for those who cannot afford treatment for this disease.
April 17 is observed as the World Haemophilia Day every year...It was started in 1989 by the World Federation of Hemophilia (WFH) which chose to bring the community together on April 17 in honour of WHF founder Frank Schnabel's birthday.
The theme of World Haemophilia Day 2023 is "Access for All: Prevention of Bleeds as the global standard of Care".
17th April 2022 - World Hemophilia Day - Theme: "Access for All: Partnership. Policy. Progress. Engaging your government, integrating inherited bleeding disorders into national policy".
The theme of World Hemophilia Day in 2020 is "Get+involved".
We are also promoting the World Haemophilia Day theme that sharing knowledge makes us stronger.
This year's EHC celebration was in line with the theme proposed by the World Federation of Hemophilia (WFH): 'Treatment for all, the vision of all.'