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Archive 1 |
I was researching cluster headaches and I found Vast Majority of Cluster Headache Patients Are Initially Misdiagnosed. In short it says that most doctors were unable to properly identify cluster headache in the majority of patients. Some were led to unnecessary surgery or otherwise given improper therapy. It also states that 16% of the people in the study made their own diagnosis. I thought this would be good information for the article but I can't find a nice spot to put it. Hopefully someone in the future can integrate this. Triddle 19:23, 15 Apr 2005 (UTC)
Why delete the link to the Cluster Headache Book at med-owl? According to the admin who has twice deleted this link, "let's not advertise other wikis unless very notable in the CH patient community (quod non))." Some thoughts: 1) the fact that another website is a wiki should be irrelevant - would it be better if I put the same information into plain html instead? 2) the page in question is in fact a unique and valuable source of information for the cluster headache community.
Floridian | Talk -- 13:27, July 6, 2005 (signed for the original poster by Wulf January 06)
Here's a quote from the "Cluster Headache Book": "One supplier that has been recommended by several people in the kudzu thread is Vitacost.com Their prices are excellent and they ship to over 50 countries. " The site appears to be nothing more than an "informational storefront" for a vitacost affiliate. Floridian is always on top of the current research on CH but the online book with plugs for vitamin shops worked into the text is inappropriate. The advertising and editorial content must be kept separate. I don't want to get into a revert war, so I'll leave it until Floridian can respond. THB 17:52, 24 February 2006 (UTC)
Wikipedia stated policy is to avoid "Links to sites that primarily exist to sell products or services" and Links to sites with objectionable amounts of advertising. ( http://en.wikipedia.org/wiki/Wikipedia:External_links#Links_normally_to_be_avoided) The CH Book does not primarily exist to sell products or services. The term 'objectionable amount of advertising' is subjective, but comparable with other sites that have not been de-listed. In the case cited above, there have been many people in countries where kudzu is not easily available that have asked about that product, and the fact that a company will ship internationally is a practical issue for patients considering that treatement option.It is one of the largest collections of information on CH written by a patient. Floridian -- Dec 2006)
This article should be honed to a standard that would allow it to be the featured article on the front page of Wikipedia so that thousands of people will read it. It will need some illustrations.
A patient of Dr. Robert Nett, a headache specialist, reports that Dr. Nett has said that although CH's are not a commonly occuring condition, is still ranked as the 5th leading cause of suicide among adult males. Those sufferers are usually ones for whom the condition became chronic, without the periods of complete remissinon between clusters of attacks.
I could not find any stats about suicide causes in adult males to verify this.
A simple web search for "suicide headache" will provide the stats you are seeking. —Preceding unsigned comment added by 98.113.130.91 ( talk) 02:08, 2 March 2010 (UTC)
According to Silberstein, Lipton, and Goadsby, Horton's Headache actually is an older term for cluster headache.
Older Terms for Cluster Headache
Stephen D. Silberstein, Richard B. Lipton. Peter J. Goadsby. "Headache in Clinical Practice." Second edition. Taylor & Francis. 2002.
I believe that Sluders Neuralgia is a separate condition and not a different name for cluster headaches. This is alluded to (confusingly) where the article discusses treating them both effectively with lidocaine.
Also, the part about "septoplasty and splinting" is laughable and should be removed as these treatments are not effective for Clusters. The citation (number 10 doesn't even relate to cluster headaches and should also be removed IMHO) The fact that clusters "may" be helped with the administration of lidocaine, in no way indicates that septoplasty and splinting would have ANY effect. The lidocaine numbs the ganglion nerve bundle in the back of the sinus cavity.
Psiloscribe 05:07, 27 June 2007 (UTC)
Since treatment for Sluder's stops a 15-year diagnosis (by several specialists)of Cluster, then what should we call it? Overweight(closes off the nasal passages) adult males (more prone to nose injury via breech birth, etc) experience "adhesions" between 2 or more nasal turbinates - this causes a short circuit of nerve endings that "backfeed" each other, causing intense unilateral "head" pain. Timing of attacks can be altered by smoking, exercise, temperature changes, alcohol, etc. - anything that can swell the membranes can temporarily intensify the pain. Pain killers (lidocaine, etc.)indicate a "pain signal" malfunction. Simple septoplasty and a tiny, temporary splint can separate the turbinates 'till the separated adhesions heal and the pain stops - for good!....This procedure has been used for years - it works. Any good, experienced ENT can confirm this. In short, Sluder's and Cluster are just 2 names for the same rose.
valde 13:21, 30 October 2007
The following discussion is closed. Please do not modify it. Subsequent comments should be made on the appropriate discussion page. No further edits should be made to this discussion.
I propose to remove that creepy illustration/ —The preceding unsigned comment was added by Hawaiianchief ( talk • contribs) 08:25, 10 December 2006 (UTC).
Check out that BBC article [1]. Hugo Dufort 06:59, 24 November 2006 (UTC)
If somebody wants to use them for this article, I put some images into Wikimedia Commons today:
Click on images and see image description for more information.
-- Friedrich K. 23:29, 23 March 2007 (UTC) (talk)
Done. -- Friedrich K. 08:38, 26 March 2007 (UTC)
Hi, one of the sections describes the headaches as "the most severe pain condition known to man." Is there any source for this? It seems as though it is grossely exagerated. Thanks alot. —Preceding unsigned comment added by 99.232.131.105 ( talk • contribs) December 1, 2007
There is no real way of indicating the "worst pain you can ever feel". What hurts me the most may not be the most painful thing to you. —Preceding unsigned comment added by Judd515 ( talk • contribs) 21:42, 27 May 2008 (UTC)
I am one of those rare females who had classic episodic CHs for 22 years before they finally stopped. Typical seasons were two months, twice a year, in spring and fall, with attacks occurring up to five/six times a day, lasting from 15 minutes to three hours. I also had two children during that time, naturally born, without drugs. The first was 8 lbs 8 oz. and a 36 hour labor (a day and a half) with *no pre-softening of the cervix*. The pain involved in that birth was so intense that my brain checked out during transition and I thought for a moment that I was somewhere else. The second child took only 3 hours to bear, and was 10 lbs 10 oz. Also pretty intense. But in no way would the pain of either of these births hold a candle to the typical cluster headache I experienced.
I believe that this is because most kinds of pain benefit from the release of endorphins (and whatever other opiate-like drugs our bodies typically release when we are in pain), but cluster headaches are made *worse* by these drugs. In fact, while I was in the hospital after my first baby was born, I went into an uncharacteristic CH season, getting attacks right there in the hospital. I was given morphine for the pain of the aftermath of childbirth, and when I took it, the morphine actually made the cluster headache I was having much more intense. I refused all pain killers after that, because I knew they would make the clusters worse.
The point being, the intensity of the pain of cluster headaches is made more unbearable by the very mechanism of the headache: that it grows in intensity in response to the very drugs our bodies use to shield us from pain. You might not want to stick your hand over a steaming kettle for a half hour, but I guarantee that if you did, your endorphins and whatnot would kick in and help you tremendously for at least the last 25 minutes of that experience (in fact, you would probably pass out). Not so with cluster headaches. The intensity of the pain is that brand of intensity that we might also experience in having our eyelids held open and being forced to watch while some horrid event unfolded before us. I can't tell you how many times I jumped out of bed and ran around the room, or sometimes even the neighborhood, flailing my arms and trying to wake my body up before an oncoming attack took hold when I was a teenager/young adult, because I knew that as bad as it might be when awake, if I got caught while sleeping (or even relaxing) it was going to be many times worse. There is something very chemically different about this kind of pain--something that truly makes it incomparable to other types of pain. I hesitate now to even tell sufferers who are only a few years into it that mine lasted 22 years.
69.109.122.108 ( talk) 06:02, 19 December 2009 (UTC)Leha Carpenter
PMC 1813127 goes greatly into the history of the disease and its nomenclature. Descriptions from 1908 and 1926 predate Horton's paper. JFW | T@lk 20:43, 27 May 2008 (UTC)
Episodic cluster headache G44.01
Chronic cluster headache G44.02
Zouhair ( talk) 17:34, 6 August 2009 (UTC)
Goadsby and his people at Queen's Square have done an RCT with oxygen: http://jama.ama-assn.org/cgi/content/abstract/302/22/2451 JFW | T@lk 22:32, 8 December 2009 (UTC)
I was wondering why there isn't any mention of Histamine Desensitization therapy for the treatment of Cluster Headaches ? I don't feel that it will work for every cluster patient, but I KNOW it will work for some, as I have myself have reaped great success from the treatment. I also met others with Cluster Headaches which flew from great distances to Chicago's Diamond Headache Clinic to have this treatment with great success.
The treatment failed for me a couple of times in a row at first, and then, it worked at stopping all of my attacks for approximately 9 weeks, then the process had to be repeated. I went through this for a few years before the attacks stopped (after taking a drug called "Savella", which may be just a coincidence, or may have stopped my chronic clusters).
There are articles out there to support the claim the Histamine will help some sufferers and plenty of patients to support that claim, with the proper research. Dr. Seymour Diamond or his daughter, Merle Diamond, from the Diamond Headache Clinic can provide clinical result trial statistics, and other information that you may wish to know.
To sum this letter up, I just ask that you include Histamine Desensitization Therapy as a treatment option that may help some Cluster Headache patients. this is not intended to "slam" any other treatments, although there are some that I find ridiculous. Please consider adding Histamine Desensitization Therapy as an option. It may help many people and change their lives for the better. Who knows, it could even save some lives !!
Thank You for your time in reading this and I hope you seriously consider my question.
A 21 year Cluster Headache sufferer. (13 years episodic & 8 more years Chronic)...I'm now cluster free for just over 100 days and I feel like I have a new leash on life !!
Respectfully,
09:28, 25 January 2010 (UTC) SOLVED 09:28, 25 January 2010 (UTC)
Thanks !! —Preceding unsigned comment added by 74.142.185.27 ( talk) 09:28, 25 January 2010 (UTC)
From the "Triggers" section, "Ingestion of alcohol or chocolate or banana are recognized as a common trigger". Alcohol, fine, nearly everyone agrees that alcohol is guaranteed to cause an attack. The others I've never heard of being common CH triggers, especially banana. Maybe they triggered a hit in someone, but they're not common. At any rate, it's uncited. Next, "Lahore or 'chinese salt' is nearly always a triger of migraines. Sexual frustration, Sex or Orgasms may trigger Cluster Headaches in some patients." First, we're not talking about migranes. And again, I can't find any external mention of any of these related to triggering CH attacks. Sexual frustration?? Seriously?
Really, nearly this entire section is anecdotal. I think the article would be better served mentioning Nitroglycerin (I believe subcutaneously), alcohol (since it is the most common and widely reported trigger), and beyond that just that vasodilators generally can be expected to trigger an attack when in cycle. Maybe keep the part "The role of diet and specific foods in triggering cluster headaches is controversial and not well understood." Right now, it sounds like a bunch of edits from people that got headaches after eating sushi, so they added "and sushi too!" Greghodg ( talk) 17:49, 4 August 2010 (UTC)
Why is there no mention of deep brain stimulation on this page? Take a look at this link: http://www.bbc.co.uk/blogs/thereporters/ferguswalsh/2010/12/brain_surgery_to_relieve_headaches.html Reissgo ( talk) 08:34, 18 December 2010 (UTC)
===Low-dose psychedelics===
There is anecdotal evidence that serotonergic psychedelics such as psilocybin (mushrooms), LSD, and LSA ( d-Lysergic acid amide, contained by Rivea corymbosa seeds) abort cluster periods and extend remission periods. The doses needed to affect cluster headaches start below those needed to produce psychedelic effects. [1] [2] [3] Melatonin, psilocybin, serotonin, and the triptan abortive drugs are closely-related tryptamines.
Researchers at McLean Hospital/Harvard Medical School investigated the ability of psilocybin ("magic mushrooms") and LSD to treat cluster headaches through medical record review and interview of 53 patients who had used either/both drug, reporting in Neurology that the majority described partial or complete relief from cluster attacks. [4] A clinical study of these treatments under the auspices of Clusterbusters is the next intended phase of research at McLean Hospital, Harvard Medical School. [5] [6]
This needs to be based on review articles per WP:MEDRS Doc James ( talk · contribs · email) 13:21, 19 January 2011 (UTC)
At the moment, Clusterhead.jpg is the image in the infobox, visible at the very top of the page. While this image may be useful later in the article, I am of the opinion that as far as lead images go, this is actually worse than having no image at all. Quickly jumping from the article title to this image will lead the reader to believe that the article is about a piece of art, and certainly not a medical condition. I welcome arguments or suggestions, but if no one objects, I may just swap out the image myself. -- Cryptic C62 · Talk 04:39, 17 November 2011 (UTC)
This comment has been hidden, as
Wikipedia does not provide medical advice.
|
---|
Wikipedia does not provide medical advice. The following comment seeks medical advice. This is not a suitable place. Please seek a real-life medical professional. Comments from well-meaning Wikipedians may not represent best practice in the poster's country of origin, and there is a danger that best practice may be misrepresented or, at worst, deliberately distorted. No further edits should be made to this discussion. |
I was sent to an ONT who said I had "Atypical Facial Pain Syndrome". When I said "that doesn't really say anything other than what I just described to you" he said "it's also known as cluster migraines." Is this generally accepted? I ask because I see no reference to it here. -- Richardson mcphillips ( talk) 19:48, 14 March 2012 (UTC)
|
[2] Doc James ( talk · contribs · email) 08:15, 15 April 2012 (UTC)
Copyright violating content is illegal and cannot be allowed in the articles. However, the following citation may be useful:
causa sui ( talk) 18:33, 19 May 2013 (UTC)
As a casual reader, this section strikes me as odd, for this line: "For many sufferers, the legal risks pale in comparison to the pain caused by the condition.[citation needed]", specifically the need for the citation? As the article has already established several times that people are willing to commit suicide to end the pain, and those are cited. So I feel that there's no need for a source - it's just reasonable to assume that any legal problems would not be as big of a deal to plenty of people who are suicidal. — Preceding unsigned comment added by 50.124.52.204 ( talk) 04:57, 1 June 2013 (UTC)
Except for the first sentence this paragraph is only relevant to the US. I think the first sentence should remain (maybe rephrased to fit into a prior paragraph), but the remaining part of the paragraph should be separate and start out by explicitly stating that it is relevant only to the US (maybe by starting the paragraph by "In the US there are difficulties in treatment arising from the recent pressure of the DEA. Depending on the state...". Should the first sentence be rephrased or just appended to the previous paragraph? Does anyone disagree about clarifying the limited scope of the paragraph in the first sentence? PinkShinyRose ( talk) 21:08, 28 July 2013 (UTC)
I don't see anything especially notable in the other page that isnt already here, and I don't see the point of this redundancy. It also tends to be a spam/NPOV attractor. -- [ UseTheCommandLine ~/ talk ]# ▄ 17:59, 28 August 2013 (UTC)
I have completed the merge. This page needs additional attention and I would be happy to collaboratively edit if there are any interested editors. LT90001 ( talk) 03:05, 12 October 2013 (UTC)
I have marked this page for cleanup because it uses numerous primary sources, has excessive use of dated, experimental or primary sources, with conflicting advice; and requires general copy-editing. This is not a comment on a particular source or treatment methodology, just that this article needs some work overall. Kind regards, LT910001 ( talk) 04:18, 13 October 2013 (UTC)
![]() | This is an archive of past discussions. Do not edit the contents of this page. If you wish to start a new discussion or revive an old one, please do so on the current talk page. |
Archive 1 |
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link) - a Brief Communications, also presented as:![]() | This is an archive of past discussions. Do not edit the contents of this page. If you wish to start a new discussion or revive an old one, please do so on the current talk page. |
Archive 1 |
I was researching cluster headaches and I found Vast Majority of Cluster Headache Patients Are Initially Misdiagnosed. In short it says that most doctors were unable to properly identify cluster headache in the majority of patients. Some were led to unnecessary surgery or otherwise given improper therapy. It also states that 16% of the people in the study made their own diagnosis. I thought this would be good information for the article but I can't find a nice spot to put it. Hopefully someone in the future can integrate this. Triddle 19:23, 15 Apr 2005 (UTC)
Why delete the link to the Cluster Headache Book at med-owl? According to the admin who has twice deleted this link, "let's not advertise other wikis unless very notable in the CH patient community (quod non))." Some thoughts: 1) the fact that another website is a wiki should be irrelevant - would it be better if I put the same information into plain html instead? 2) the page in question is in fact a unique and valuable source of information for the cluster headache community.
Floridian | Talk -- 13:27, July 6, 2005 (signed for the original poster by Wulf January 06)
Here's a quote from the "Cluster Headache Book": "One supplier that has been recommended by several people in the kudzu thread is Vitacost.com Their prices are excellent and they ship to over 50 countries. " The site appears to be nothing more than an "informational storefront" for a vitacost affiliate. Floridian is always on top of the current research on CH but the online book with plugs for vitamin shops worked into the text is inappropriate. The advertising and editorial content must be kept separate. I don't want to get into a revert war, so I'll leave it until Floridian can respond. THB 17:52, 24 February 2006 (UTC)
Wikipedia stated policy is to avoid "Links to sites that primarily exist to sell products or services" and Links to sites with objectionable amounts of advertising. ( http://en.wikipedia.org/wiki/Wikipedia:External_links#Links_normally_to_be_avoided) The CH Book does not primarily exist to sell products or services. The term 'objectionable amount of advertising' is subjective, but comparable with other sites that have not been de-listed. In the case cited above, there have been many people in countries where kudzu is not easily available that have asked about that product, and the fact that a company will ship internationally is a practical issue for patients considering that treatement option.It is one of the largest collections of information on CH written by a patient. Floridian -- Dec 2006)
This article should be honed to a standard that would allow it to be the featured article on the front page of Wikipedia so that thousands of people will read it. It will need some illustrations.
A patient of Dr. Robert Nett, a headache specialist, reports that Dr. Nett has said that although CH's are not a commonly occuring condition, is still ranked as the 5th leading cause of suicide among adult males. Those sufferers are usually ones for whom the condition became chronic, without the periods of complete remissinon between clusters of attacks.
I could not find any stats about suicide causes in adult males to verify this.
A simple web search for "suicide headache" will provide the stats you are seeking. —Preceding unsigned comment added by 98.113.130.91 ( talk) 02:08, 2 March 2010 (UTC)
According to Silberstein, Lipton, and Goadsby, Horton's Headache actually is an older term for cluster headache.
Older Terms for Cluster Headache
Stephen D. Silberstein, Richard B. Lipton. Peter J. Goadsby. "Headache in Clinical Practice." Second edition. Taylor & Francis. 2002.
I believe that Sluders Neuralgia is a separate condition and not a different name for cluster headaches. This is alluded to (confusingly) where the article discusses treating them both effectively with lidocaine.
Also, the part about "septoplasty and splinting" is laughable and should be removed as these treatments are not effective for Clusters. The citation (number 10 doesn't even relate to cluster headaches and should also be removed IMHO) The fact that clusters "may" be helped with the administration of lidocaine, in no way indicates that septoplasty and splinting would have ANY effect. The lidocaine numbs the ganglion nerve bundle in the back of the sinus cavity.
Psiloscribe 05:07, 27 June 2007 (UTC)
Since treatment for Sluder's stops a 15-year diagnosis (by several specialists)of Cluster, then what should we call it? Overweight(closes off the nasal passages) adult males (more prone to nose injury via breech birth, etc) experience "adhesions" between 2 or more nasal turbinates - this causes a short circuit of nerve endings that "backfeed" each other, causing intense unilateral "head" pain. Timing of attacks can be altered by smoking, exercise, temperature changes, alcohol, etc. - anything that can swell the membranes can temporarily intensify the pain. Pain killers (lidocaine, etc.)indicate a "pain signal" malfunction. Simple septoplasty and a tiny, temporary splint can separate the turbinates 'till the separated adhesions heal and the pain stops - for good!....This procedure has been used for years - it works. Any good, experienced ENT can confirm this. In short, Sluder's and Cluster are just 2 names for the same rose.
valde 13:21, 30 October 2007
The following discussion is closed. Please do not modify it. Subsequent comments should be made on the appropriate discussion page. No further edits should be made to this discussion.
I propose to remove that creepy illustration/ —The preceding unsigned comment was added by Hawaiianchief ( talk • contribs) 08:25, 10 December 2006 (UTC).
Check out that BBC article [1]. Hugo Dufort 06:59, 24 November 2006 (UTC)
If somebody wants to use them for this article, I put some images into Wikimedia Commons today:
Click on images and see image description for more information.
-- Friedrich K. 23:29, 23 March 2007 (UTC) (talk)
Done. -- Friedrich K. 08:38, 26 March 2007 (UTC)
Hi, one of the sections describes the headaches as "the most severe pain condition known to man." Is there any source for this? It seems as though it is grossely exagerated. Thanks alot. —Preceding unsigned comment added by 99.232.131.105 ( talk • contribs) December 1, 2007
There is no real way of indicating the "worst pain you can ever feel". What hurts me the most may not be the most painful thing to you. —Preceding unsigned comment added by Judd515 ( talk • contribs) 21:42, 27 May 2008 (UTC)
I am one of those rare females who had classic episodic CHs for 22 years before they finally stopped. Typical seasons were two months, twice a year, in spring and fall, with attacks occurring up to five/six times a day, lasting from 15 minutes to three hours. I also had two children during that time, naturally born, without drugs. The first was 8 lbs 8 oz. and a 36 hour labor (a day and a half) with *no pre-softening of the cervix*. The pain involved in that birth was so intense that my brain checked out during transition and I thought for a moment that I was somewhere else. The second child took only 3 hours to bear, and was 10 lbs 10 oz. Also pretty intense. But in no way would the pain of either of these births hold a candle to the typical cluster headache I experienced.
I believe that this is because most kinds of pain benefit from the release of endorphins (and whatever other opiate-like drugs our bodies typically release when we are in pain), but cluster headaches are made *worse* by these drugs. In fact, while I was in the hospital after my first baby was born, I went into an uncharacteristic CH season, getting attacks right there in the hospital. I was given morphine for the pain of the aftermath of childbirth, and when I took it, the morphine actually made the cluster headache I was having much more intense. I refused all pain killers after that, because I knew they would make the clusters worse.
The point being, the intensity of the pain of cluster headaches is made more unbearable by the very mechanism of the headache: that it grows in intensity in response to the very drugs our bodies use to shield us from pain. You might not want to stick your hand over a steaming kettle for a half hour, but I guarantee that if you did, your endorphins and whatnot would kick in and help you tremendously for at least the last 25 minutes of that experience (in fact, you would probably pass out). Not so with cluster headaches. The intensity of the pain is that brand of intensity that we might also experience in having our eyelids held open and being forced to watch while some horrid event unfolded before us. I can't tell you how many times I jumped out of bed and ran around the room, or sometimes even the neighborhood, flailing my arms and trying to wake my body up before an oncoming attack took hold when I was a teenager/young adult, because I knew that as bad as it might be when awake, if I got caught while sleeping (or even relaxing) it was going to be many times worse. There is something very chemically different about this kind of pain--something that truly makes it incomparable to other types of pain. I hesitate now to even tell sufferers who are only a few years into it that mine lasted 22 years.
69.109.122.108 ( talk) 06:02, 19 December 2009 (UTC)Leha Carpenter
PMC 1813127 goes greatly into the history of the disease and its nomenclature. Descriptions from 1908 and 1926 predate Horton's paper. JFW | T@lk 20:43, 27 May 2008 (UTC)
Episodic cluster headache G44.01
Chronic cluster headache G44.02
Zouhair ( talk) 17:34, 6 August 2009 (UTC)
Goadsby and his people at Queen's Square have done an RCT with oxygen: http://jama.ama-assn.org/cgi/content/abstract/302/22/2451 JFW | T@lk 22:32, 8 December 2009 (UTC)
I was wondering why there isn't any mention of Histamine Desensitization therapy for the treatment of Cluster Headaches ? I don't feel that it will work for every cluster patient, but I KNOW it will work for some, as I have myself have reaped great success from the treatment. I also met others with Cluster Headaches which flew from great distances to Chicago's Diamond Headache Clinic to have this treatment with great success.
The treatment failed for me a couple of times in a row at first, and then, it worked at stopping all of my attacks for approximately 9 weeks, then the process had to be repeated. I went through this for a few years before the attacks stopped (after taking a drug called "Savella", which may be just a coincidence, or may have stopped my chronic clusters).
There are articles out there to support the claim the Histamine will help some sufferers and plenty of patients to support that claim, with the proper research. Dr. Seymour Diamond or his daughter, Merle Diamond, from the Diamond Headache Clinic can provide clinical result trial statistics, and other information that you may wish to know.
To sum this letter up, I just ask that you include Histamine Desensitization Therapy as a treatment option that may help some Cluster Headache patients. this is not intended to "slam" any other treatments, although there are some that I find ridiculous. Please consider adding Histamine Desensitization Therapy as an option. It may help many people and change their lives for the better. Who knows, it could even save some lives !!
Thank You for your time in reading this and I hope you seriously consider my question.
A 21 year Cluster Headache sufferer. (13 years episodic & 8 more years Chronic)...I'm now cluster free for just over 100 days and I feel like I have a new leash on life !!
Respectfully,
09:28, 25 January 2010 (UTC) SOLVED 09:28, 25 January 2010 (UTC)
Thanks !! —Preceding unsigned comment added by 74.142.185.27 ( talk) 09:28, 25 January 2010 (UTC)
From the "Triggers" section, "Ingestion of alcohol or chocolate or banana are recognized as a common trigger". Alcohol, fine, nearly everyone agrees that alcohol is guaranteed to cause an attack. The others I've never heard of being common CH triggers, especially banana. Maybe they triggered a hit in someone, but they're not common. At any rate, it's uncited. Next, "Lahore or 'chinese salt' is nearly always a triger of migraines. Sexual frustration, Sex or Orgasms may trigger Cluster Headaches in some patients." First, we're not talking about migranes. And again, I can't find any external mention of any of these related to triggering CH attacks. Sexual frustration?? Seriously?
Really, nearly this entire section is anecdotal. I think the article would be better served mentioning Nitroglycerin (I believe subcutaneously), alcohol (since it is the most common and widely reported trigger), and beyond that just that vasodilators generally can be expected to trigger an attack when in cycle. Maybe keep the part "The role of diet and specific foods in triggering cluster headaches is controversial and not well understood." Right now, it sounds like a bunch of edits from people that got headaches after eating sushi, so they added "and sushi too!" Greghodg ( talk) 17:49, 4 August 2010 (UTC)
Why is there no mention of deep brain stimulation on this page? Take a look at this link: http://www.bbc.co.uk/blogs/thereporters/ferguswalsh/2010/12/brain_surgery_to_relieve_headaches.html Reissgo ( talk) 08:34, 18 December 2010 (UTC)
===Low-dose psychedelics===
There is anecdotal evidence that serotonergic psychedelics such as psilocybin (mushrooms), LSD, and LSA ( d-Lysergic acid amide, contained by Rivea corymbosa seeds) abort cluster periods and extend remission periods. The doses needed to affect cluster headaches start below those needed to produce psychedelic effects. [1] [2] [3] Melatonin, psilocybin, serotonin, and the triptan abortive drugs are closely-related tryptamines.
Researchers at McLean Hospital/Harvard Medical School investigated the ability of psilocybin ("magic mushrooms") and LSD to treat cluster headaches through medical record review and interview of 53 patients who had used either/both drug, reporting in Neurology that the majority described partial or complete relief from cluster attacks. [4] A clinical study of these treatments under the auspices of Clusterbusters is the next intended phase of research at McLean Hospital, Harvard Medical School. [5] [6]
This needs to be based on review articles per WP:MEDRS Doc James ( talk · contribs · email) 13:21, 19 January 2011 (UTC)
At the moment, Clusterhead.jpg is the image in the infobox, visible at the very top of the page. While this image may be useful later in the article, I am of the opinion that as far as lead images go, this is actually worse than having no image at all. Quickly jumping from the article title to this image will lead the reader to believe that the article is about a piece of art, and certainly not a medical condition. I welcome arguments or suggestions, but if no one objects, I may just swap out the image myself. -- Cryptic C62 · Talk 04:39, 17 November 2011 (UTC)
This comment has been hidden, as
Wikipedia does not provide medical advice.
|
---|
Wikipedia does not provide medical advice. The following comment seeks medical advice. This is not a suitable place. Please seek a real-life medical professional. Comments from well-meaning Wikipedians may not represent best practice in the poster's country of origin, and there is a danger that best practice may be misrepresented or, at worst, deliberately distorted. No further edits should be made to this discussion. |
I was sent to an ONT who said I had "Atypical Facial Pain Syndrome". When I said "that doesn't really say anything other than what I just described to you" he said "it's also known as cluster migraines." Is this generally accepted? I ask because I see no reference to it here. -- Richardson mcphillips ( talk) 19:48, 14 March 2012 (UTC)
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[2] Doc James ( talk · contribs · email) 08:15, 15 April 2012 (UTC)
Copyright violating content is illegal and cannot be allowed in the articles. However, the following citation may be useful:
causa sui ( talk) 18:33, 19 May 2013 (UTC)
As a casual reader, this section strikes me as odd, for this line: "For many sufferers, the legal risks pale in comparison to the pain caused by the condition.[citation needed]", specifically the need for the citation? As the article has already established several times that people are willing to commit suicide to end the pain, and those are cited. So I feel that there's no need for a source - it's just reasonable to assume that any legal problems would not be as big of a deal to plenty of people who are suicidal. — Preceding unsigned comment added by 50.124.52.204 ( talk) 04:57, 1 June 2013 (UTC)
Except for the first sentence this paragraph is only relevant to the US. I think the first sentence should remain (maybe rephrased to fit into a prior paragraph), but the remaining part of the paragraph should be separate and start out by explicitly stating that it is relevant only to the US (maybe by starting the paragraph by "In the US there are difficulties in treatment arising from the recent pressure of the DEA. Depending on the state...". Should the first sentence be rephrased or just appended to the previous paragraph? Does anyone disagree about clarifying the limited scope of the paragraph in the first sentence? PinkShinyRose ( talk) 21:08, 28 July 2013 (UTC)
I don't see anything especially notable in the other page that isnt already here, and I don't see the point of this redundancy. It also tends to be a spam/NPOV attractor. -- [ UseTheCommandLine ~/ talk ]# ▄ 17:59, 28 August 2013 (UTC)
I have completed the merge. This page needs additional attention and I would be happy to collaboratively edit if there are any interested editors. LT90001 ( talk) 03:05, 12 October 2013 (UTC)
I have marked this page for cleanup because it uses numerous primary sources, has excessive use of dated, experimental or primary sources, with conflicting advice; and requires general copy-editing. This is not a comment on a particular source or treatment methodology, just that this article needs some work overall. Kind regards, LT910001 ( talk) 04:18, 13 October 2013 (UTC)
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Archive 1 |
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